Motor neuron disease

Disability Care

Motor Neurone Disease (MND), also known as Amyotrophic Lateral Sclerosis or Lou Gehrig’s Disease, is a neurodegenerative condition that affects muscle strength, control, and coordination. It can strike adults of any age, but is most commonly diagnosed in older adults in their 60s or 70s.

The effects of MND are life-altering and can be challenging, but with proper treatment and support, patients can live longer and enjoy a better quality of life.
MND is a rapidly progressive disease that can present in different parts of the body, with varying symptoms and rates of progression. Some common signs and symptoms of MND include weakness in the hands, feet, or voice, fatigue, muscle aches and cramps, clumsiness and stumbling, difficulty swallowing or speaking, muscle wasting and weight loss, emotional instability, and cognitive changes.

The exact cause of MND is still unknown, although there are many theories and ongoing research. It is estimated that 5-10% of cases are genetically linked. As the disease progresses and patients' functional status declines, they may require increasing levels of care and support. Personalised Care is here to help connect you to the care and treatments you need.

Introduction to Motor Nuerone Disease

Why Personalised Care For Motor Neurone Disease

At Personalised Care, we understand the challenges and complexities that come with living with Motor Neurone Disease (MND). That's why we are dedicated to providing exceptional support services that are tailored to meet your unique needs.

Our team of trained and experienced support workers are passionate about helping people with MND, and they are committed to ensuring that you or your loved one has all the necessary support to live life to the fullest.

At Personalised Care, we are participant-centric, meaning that you are at the center of everything we do. We believe in fostering a sense of belonging and promoting first-class care, and we strive to make a positive impact in the lives of those we serve.

We take a personalised approach to your support schedule and roll-out, continuously reviewing and updating your support plan to ensure that it remains optimal for you to achieve your personal, social, and emotional wellbeing goals.

Our focus is on matching you with a support worker who speaks your language, understands your goals, and is committed to providing you with the best possible care. You can trust us to work tirelessly to provide you with the support you need to live a happy and fulfilling life.

With our quick turnaround times for referrals, getting the support you need has never been easier. Contact us today to learn more about our core support, plan management, accommodation, and support coordination services.

What Does Motor Neurone Disease Support Involve?

At Personalised Care, we believe that every person deserves to live their best life, no matter their circumstances. That's why we offer a full range of MND support services, designed to help you live life to the fullest. Our services are tailored to your unique needs and goals, so you can feel confident knowing that you have the support you need to live life on your terms.

Our four major categories of MND support services include:

  • Core Supports: To help you with day-to-day activities and improve your overall quality of life.

  • Support Coordination: To ensure that all your support services work together seamlessly for you.

  • Plan Management: To help you navigate the complexities of the NDIS and ensure you are getting the most out of your funding.

  • Accommodation/Supported Independent Living (SIL): To help you live independently, with the comfort and security of knowing you have support when you need it.

At Personalised Care, we are participant-centric, which means that you are at the heart of everything we do. Our goal is to help you reach your full potential, by fostering a sense of belonging and providing first-class care. So, why wait? Get in touch with us today and discover how we can help you live your best life with MND!

Types of Support Services for Motor Neurone Disease

At Personalised Care, we understand the unique challenges that come with Motor Neuron Disease (MND) and are dedicated to providing personalized support to help you live a fulfilling life. Our expert MND specialists work closely with you to understand your needs and create a customized support plan that fits your unique circumstances.

Whether you need assistance with daily tasks such as personal care, household chores, and travel, or you're looking to develop new skills and participate in the community, our wide range of MND support services has got you covered. With options including personal care, household tasks, travel and transport, garden maintenance, community participation, and life skills development, the possibilities are endless.

Our participant-centric approach means that you're always at the center of your support plan, and we're committed to fostering a sense of belonging as we work with you to achieve your goals. Experience first-class care and discover a world of possibilities with Personalised Care's MND support services.


What Does NDIS do for Motor Neurone Disease

Motor Neurone Disease (MND) is covered under the National Disability Insurance Scheme (NDIS) and you may be eligible for funding to avail of Personalised Care's support services.

MND falls under the List A category of NDIS eligibility. If your loved one has been diagnosed with severe MND, they are very likely to be approved for funding (for example: assessed as Level 3, 4, or 5 on the Gross Motor Function Classification System – GMFCS). If a severe diagnosis of MND has not been established, you may fall under List B which requires further functional assessment prior to being approved for NDIS funding.

The National Disability Insurance Scheme (NDIS) offers a wide range of support for those with Motor Neurone Disease, enabling you or your loved one to live life to the fullest. From speech and occupational therapy to personal care and nutritional support, the NDIS covers essential services to enhance the quality of life for those with MND.

NDIS funding can even extend to hiring a Support Worker to provide assistance at home. And, if you're an NDIS participant, plan management and support coordination funding is often made available to you. The types and amounts of funding available are tailored to meet the specific needs and functional loss of each individual with MND.

For young children under seven, NDIS funding provides early interventions, takes a family-centered approach, and connects families with MND service providers. At Personalised Care, our team can help guide you or your loved one through the NDIS application process to receive the necessary funding for MND support services. Our participant-centric approach aligns with the NDIS' mission to empower individuals and families with the support they need to live a fulfilling life.


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If you’d like to know more about Motor Neurone Disease, or how we can assist, we’d love to hear from you!